June 28, 2008

share and share alike

Remember my revelation a few months ago, when I realized that it's a sin that we, as women, aren't more open about our "female" issues?

According to the U.S. Department of Health and Human Services, about 1 in 10 women of childbearing age has polycystic ovary syndrome (PCOS).

In the past two weeks alone, I have had three more women come up to me and say, "I just found out my (insert female's relationship here) has PCOS." It seems as though they're coming out of the woodwork and slowly beginning to talk more about it - yay! In each instance, I've happily provided the URL to this blog and my cell number if they want to talk.

I feel an activist-like crusade coming on...I'm just not sure where to start. I guess this blog's as good a place as any. So what about you? Feel like sharing your story or chatting with people going through what you are? Feel free to click below and add your thoughts to this post - about having PCOS, or what you're going through/went through.

It's okay to talk! :-)

(Though my readers who choose to remain anonymous are equally appreciated, as well.) ;-)

June 26, 2008

when life give you lemons...

Add some vodka and make lemon drop martinis!

(One in a series of funny posts - others can be seen here and here - reassuring folks about our state of mind as we approach the possibility of Baby DeFrias. Rest assured we aren't taking ourselves too seriously and are trying to find the humor in things when we can.)

June 17, 2008

gonna do the test

I heard back from Dr. Nice Lady's assistant, and she said while I can proceed without the HSG test, they really would prefer I take it. It's an expensive test, but I guess when put in the context of much more expensive IVF tests/treatments (that I've heard can go into the tens of thousands of dollars), $169 isn't so bad.

I realized I have $250 on my FSA plan at work to spend before August, so I'll schedule the test (7-10 days after I get my next period) and use that money to pay for it. Perhaps my future includes being an activist for women who need help having a baby -- and getting these treatments covered under regular healthcare so they aren't so expensive!

June 11, 2008

coding update

I was sort of called out on the table by a reader for not blogging my updates, so I'm back!

I heard back from Dr. Nice Lady's office regarding the coding for the HSG test. Here's a portion of the email I sent to her:

"The Kaiser scheduler said that all infertility-related tests are 50% co-pay. Can you change the referral for the HSG test to a test for my health, as opposed to being baby-related? After all, regardless of whether we have children, wouldn't this test be performed to rule out health complications due to my PCOS?"

And her assistant, who truly is one of the kindest women I've met, told me the HSG test is specifically for infertility. Which means BigHMO won't bend. Crap. I do have to give BigHMO props because they have a very efficient, semi-user friendly site where you can find a lot of information and easily email your doctor (and they have to get back to you within 2 days!). So again, props where props are due.

So now I have to decide whether I'm going to do the test or not. It's not an imperative test, but one Dr. Nice Lady would be good to see if my fallopian tubes are blocked. Since I've gotten my period twice on my own, I almost want to see what happens (meaning, since my period's coming on its own, can I just see if I get pregnant on my own?).

The more I think about it, though, I realize that I shouldn't sit here and wonder on my own. Two years ago, when I was originally diagnosed with PCOS, I never went back for the follow-up tests because I was scared. Scared that I didn't know what was going on, scared that I didn't know anyone to ask for help, scared of the unexpected. I waited two years to go back to the doctor, and I know I shouldn't do that again.

To that point, I just took a break from blogging and typed a reply to Dr. Nice Lady's assistant and asked if I have to take the HSG test or if we can move forward without it. I'll let you know what she says. (And I won't wait so long to bring you the update -- promise!)